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Michael Jesse
On October 13th, 2009 we found out that our unborn baby, who we now know as Michael Jesse, was diagnosed with Bilateral Renal Agenesis, otherwise known as Potter's Syndrome, a fatal condition. Michael came into our world and left for heaven on January 22nd, 2010, but not without impacting hundreds, perhaps even thousands, of people by his short, little life.
October 13th Began With Hope
by Rick
Michael was the gift God brought into our lives in room 316. Our desire for this blog is to bring glory to God for knitting together such a beautiful life. You will find the journey which we have been on since October 13th, 2009, with all of our prayer requests and our personal reflections. The story of this journey has not ended, for as Michael dances in Heaven, we await to be reunited with him in glory.
To start at the beginning, below are the first posts we wrote about Michael:
by Rick
Carrying Through
by Summer
These organizations helped us in this difficult journey
The Haven Network - A Perinatal Hospice based in Rockford, IL.
Now I Lay Me Down To Sleep – An International Organization Dedicated to Providing Professional Photography for Child Loss
Bella Vie Studio - Kristin was our amazing photographer who did our pregnancy shoot and was there to take pictures of Michael’s birth to help us remember his every feature. She did this as a service through Now I Lay Me Down To Sleep and we are forever grateful for this ministry.
Living Grace Community Church - Our church home through whom God used to serve us with meals, cards, encouragement and love through our journey of grief.
Kahle Moore Funeral Home - Steve Moore’s professionalism, sensitivity and care helped us during a very difficult time.
The Grace Effect
The Grace Effect - The original home of Michael's story and Daddy's ongoing place of thoughts and testimony.
Blog Archive
Beautiful. Thank you for being so open and sharing with the world.
ReplyDeleteHello Summer and Rick,
ReplyDeleteMy name is Jennifer Hill and I found your video on youtube when I pulled up my own son's to watch as I often do. My husband and I gave birth to our son Elijah, February 21, 2010. Eli was diagnosed with Potter's Syndrome at our 20 week anatomy scan on Novemeber 30, 2009. He was born at 32 weeks and lived just two hours after his birth. Tomorrow is his 1st Heavenly birthday. Eli was our fourth child and I am currently carrying our fifth who is due to arrive April 15th, which is Eli's exact original due date (only one year later). I also blog about our experience. My blog address is www.elisvalley-perfectlove.blogspot.com. It is so rare to find other Potter's parents but I have in the last year been in contact with five others across the country. Michael sure is a beautiful little guy! Although God's blessings seem to be a mystery sometimes, they are blessings nonetheless. Eli was a blessing to us as I am sure Michael was or is rather to you. Anyway, I just wanted to reach out.
In Christ,
Jennifer Hill